Disability Research News
North Texas Traumatic Brain Injury Model System
Research from the NIDILRR-funded North Texas Traumatic Brain Injury Model System Center (NTTBIMS) was recently featured in a news segment, ...
Parents with Serious Mental Illnesses May Face More Scrutiny from Child Protective Services
Researchers at the Rehabilitation Research and Training Center on Community Integration and Participation of Individuals with Psychiatric Disabilities looked at data from the PULSE Healthcare Survey, a large national survey of adults ages 18-65 conducted annually by Truven Health Analytics. The data for this study came from 42,761 respondents who answered questions about their mental health and parenting status.
For Youths with Mental Health Disorders Who Were Involved with the Criminal Justice System, Education is Critical for Job Success
Researchers at the Rehabilitation Research and Training Center on Learning and Working During the Transition to Adulthood (Transitions ACR) looked at data from 1,261 justice-involved youths in Pennsylvania and Arizona who were enrolled in a larger study called the Pathways to Desistance study. The youths were 14-18 years old when they joined the study, and they entered the study after being found guilty of a serious crime such as assault, burglary, or drug or property felonies.
Young Adult Children of Parents with Disabilities Can Experience High Self-Esteem and Positive Childhoods
Researchers at the National Center for Parents with Disabilities surveyed 2,340 young adults who had applied for a college scholarship. The respondents were young adults ages 17-21 who were enrolled in or accepted to college and who had at least one parent with a disability.
nTIDE January 2019 Jobs Report: Job Numbers Hold Steady for Americans with Disabilities
RTC:Rural produces fact sheet on employment disparity for rural people with disabilities
In December 2018 the U.S. Census Bureau released the 2013-2017 American Community Survey summary data. In the recently released fact sheet “Employment disparity grows for rural Americans with disability,” RTC:Rural researchers used this data to begin exploring how employment rates have changed for people with disabilities in the context of changing economic conditions. They found increasing disparities between people with and without disabilities across the country as well as across the rural-urban continuum.
Improving Care to Prevent Suicide Among People with Serious Mental Illness
Suicide prevention initiatives are part of much broader systems connected to activities such as the diagnosis of mental illness, the recognition of clinical risk, improving access to care, and coordinating with a broad range of outside agencies and entities around both prevention and public health efforts. Yet suicide is also an intensely personal issue that continues to be surrounded by stigma.
Brief Counseling May Help People with Muscle and Joint Conditions Stay Employed
Muscle and joint conditions such as arthritis, lupus, or fibromyalgia may result in long-lasting pain and disability. According to recent studies, people with those conditions may have difficulty keeping jobs if their symptoms make it hard to get to and from work or to perform work-related activities, such as walking, standing, or bending. They may also encounter physical barriers in the workplace, such as stairs or heavy doors, or policy barriers such as inflexible leave policies.
Longitudinal Examination of Resilience After Traumatic Brain Injury: A Traumatic Brain Injury Model Systems Study
Harnessing Mobile Devices for Nervous System Disorders
The critical importance of using mobile technology is clear to anyone in the health professions, particularly those who treat people with central nervous system (CNS) disorders. To explore current developments and opportunities for using mobile technology to advance research and treatment of CNS disorders, the National Academies’ Forum on Neuroscience and Nervous System Disorders hosted a workshop in June 5–6, 2018. This publication summarizes the presentations and discussions at the workshop.
Thirty Years of National Institute on Disability, Independent Living, and Rehabilitation Research Traumatic Brain Injury Model Systems Center Research—An Update
The Traumatic Brain Injury Model Systems Center (TBIMSC) program was established by the National Institute on Disability, Independent Living, and Rehabilitation Research in 1987, with the goal of conducting research to improve the care and outcomes for individuals with moderate-to-severe traumatic brain injury (TBI). This article provides an update on TBIMSC research program activities since 2010 when a similar article was published.
The Model Systems Databases
NIDILRR funds three national data centers that house and disseminate data on individuals who are treated through Spinal Cord Injury Model System Centers, the Traumatic Brain Injury Model System Centers, and the Burn Injury Model System Centers.
HCBS Outcome Measurement Database
The HCBS Instrument Database: Over 120 instruments, including those widely used at the national level as well as those developed for more specific purposes (e.g., research projects) are contained within the database. This includes those tools most frequently used by States in their assessment of HCBS outcomes (e.g., National Core Indicators Adult Consumer Survey (NCI ACS); National Core Indicators Aging and Disabilities (NCI AD); CQL Personal Outcome Measures (POM).
“Going the Extra Mile”: Disclosure, Accommodation, and Stigma Management among Working Women with Disabilities
Although research has quantitatively evaluated the impacts of stigma upon working women with disabilities (WWD), nuanced, qualitative accounts voiced by these women are rare. To address this literature gap, we conducted seven focus groups with 42 WWD. We asked: “What are women’s experiences of disability disclosure and accommodation in the workplace?” Findings reveal that WWD face intentional and unintentional structural discrimination and must weigh the pros and cons of disclosure and navigate devaluation threats in pursuing workplace accommodations.
Mild TBI Can Have a Lasting Impact for Young Children, but It’s Not Clear Whether They Receive the Rehabilitation and Education Services They May Need
A traumatic brain injury (TBI) is brain damage resulting from an external force, such as a fall or a car accident. TBI can be rated as mild, moderate, or severe depending on how long the person loses consciousness. Some people with mild TBI, sometimes called a concussion, may still experience injury serious enough for the damage to be seen on imaging tests like magnetic resonance imaging (MRI).
New Guideline for Pediatric mTBI Includes Practice-Changing Recommendations
The guideline consists of 19 sets of clinical recommendations that are applicable to healthcare providers who care for patients with mTBI in all settings, and seeks to improve the care of young patients with this injury. The practice-changing recommendations include using validated, age-appropriate symptom scales to diagnose mTBI, providing patients with instructions on returning to activity customized to their symptoms, and counseling patients to return gradually to non-sports activities after no more than a few days of rest, among others.
Prevalence of Disabilities and Health Care Access by Disability Status and Type Among Adults — United States, 2016
The study shows that one in four adults in the US reports having at least one disability. Mobility disabilities were most prevalent, followed by cognition, independent living, hearing, vision, and self-care. Rates varied among age groups, genders, and racial and ethnic groups. The study also found that adults with disabilities, particularly those between 18 and 64, experienced disparities in access to health care, such as health insurance coverage, having a usual health care provider, and receiving a check-up during the last year.
Building An Online Presence: Using Online Media to Promote Community Inclusion
This toolkit provides suggestions for promoting community living and participation of individuals with mental health conditions through social media and web-based communication. It examines how agencies can use websites, newsletters, and various social media platforms to: (1) connect individuals to mainstream community resources; (2) highlight instances of community participation; and (3) stay active in producing community inclusion related content on their online media.
For People Who are Blind or Visually Impaired, Managing Transportation May be Key for Employment Success
People who are blind or visually impaired have lower employment rates than people without disabilities. Many people with visual impairment are unable to drive. As a result, they may face additional challenges in finding reliable transportation to get to and from work, which can limit their options for employment. Orientation and mobility (O&M) instructors can teach children and adults who are blind or visually impaired to travel safely on foot and to use public transportation.
Maintenance Guide for Users of Manual and Power Wheelchairs
Wheelchair breakdowns can injure wheelchair users and limit mobility and social participation. Poor wheelchair maintenance increases the risk of wheelchair breakdowns and personal injury or death, and increases the costs of medical care. The number of users injured from wheelchair breakdowns doubled from 1991 to 2016. According to a 2016 study, up to 18% of wheelchair users experience a wheelchair-related injury each year. Furthermore, 44–57% reported at least one wheelchair breakdown in the past 6 months.
nTIDE June 2018 Jobs Report: Modest Downturn in Jobs Ends Extended Run for Americans with Disabilities
Kessler Foundation and University of New Hampshire release nTIDE Report – Monthly Update:
Family & Individual Needs for Disability Support (FINDS) Community Report 2017
A report presenting the results of the Family & Individual Needs for Disability Supports (FINDS) survey, launched in 2017 by ICI's Research and Training Center on Community Living in collaboration with The Arc of the United States to assess the status of caregivers of individuals with intellectual and developmental disabilities (I/DD) in the United States. The survey and resulting Community Report shed light on the experiences of families who provide supports to a family member with I/DD.
Aging and Disability Beyond Stereotypes to Inclusion: Proceedings of a Workshop
Many different groups of people are subject to stereotypes. Positive stereotypes (e.g., “older and wiser”) may provide a benefit to the relevant groups. However, negative stereotypes of aging and of disability continue to persist and, in some cases, remain socially acceptable. Research has shown that when exposed to negative images of aging, older persons demonstrate poor physical and cognitive performance and function, while those who are exposed to positive images of aging (or who have positive self-perceptions of aging) demonstrate better performance and function.
A Transportation Guide for Persons who are Blind or Have Low Vision
A Transportation Guide for Persons who are Blind or Have Low Vision contains helpful information about finding and using transportation options, and is designed for persons with vision impairments or those who serve them. Forward the link or print copies of the document as needed. Students or researchers may prefer to use the version with in-text citations, located on our Publications for Download page at https://www.blind.msstate.edu/research/nrtc-publications/download/.
DOT Seeks Comments on Regulations for Service and Support Animals on Flights
The US Department of Transportation (DOT) is seeking public comment on amending its Air Carrier Access Act (ACAA) regulation on the transportation of service animals. Comments are due by July 9th via mail, fax, hand delivery, or through the regulations.gov portal.