Disability Research News
NIDILRR-funded Rocky Mountain ADA Regional Center published a new course on Accessible Voting Places
Animation May Help Children with Autism Spectrum Disorders Learn to Use Symbol-Based Communication Devices
Researchers on the project “Do Animations Facilitate Symbol Understanding in Children with Autism?” enrolled 27 children with ASD in a...
Peer to Peer: Training Peer Health Coaches to Lead a Health Messages Program for Their Peers with Intellectual and Developmental Disabilities
Researchers at the Rehabilitation Research and Training Center on Developmental Disabilities and Health enrolled 33 peer health coaches, 35 staff mentors, and 311 program participants with IDD in a study to test the Peer-to-Peer HealthMessages Program. The peer health coaches were adults with IDD who received services from local CBOs and who wished to become volunteer peer health coaches. The mentors were staff working at CBOs serving the peer health coaches and other adults with IDD.
Optimal Utilization of Psychosocial Supports in Medication-Assisted Treatment for Opioid Use Disorder Issue Brief
As the opioid epidemic has evolved into a national crisis, the need for treatment has increased greatly. Medication-assisted treatment (MAT) is a “whole-patient” approach to the treatment of opioid use disorder (OUD) that combines the use of medications and psychosocial supports, such as therapy, counseling, self-help groups, and case management. MAT effectively treats OUD by decreasing opioid use and opioid-related overdose deaths.
Improving support for older adults with I/DD who have dementia and their families
Adults with I/DD may develop dementia at an earlier age and have early signs that are more difficult to identify than in other adults. As the population of older adults in the United States continues to rapidly increase, this group will likely need additional services and supports.
Culturally informed parent education programs can help Latinx families raising children with Autism
Latinx children with autism are diagnosed later and receive fewer services than their non-Latinx counterparts. This occurs due to several challenges faced by families.The care that families receive is often perceived by parents as inappropriate or of poor quality. This may be due to several factors, including a lack of cultural and linguistic competence of service providers.
Understanding family caregiver’s experiences with participant-directed programs
Providers, social workers, and other professionals must better understand families’ subjective complexity and needs to provide more effective consumer driven programs. Participant Directed (PD) programs offer care recipients greater choice and control over the services and supports that they need to meet long-term care needs. Care recipients can choose who they want to provide care to them and can control their own budget. Overall, PD programs lead to lower unmet needs and higher levels of satisfaction.
ACL Launches Online Hub of Elder Justice Resources
The Administration for Community Living (ACL) at the Department of Health and Human Services launched elderjustice.acl.gov, an online gateway to seven ACL resource centers which support the independence and community inclusion of older adults and adults with disabilities.
Workforce Disability Inclusion Guide
NASEM Proceedings Explore AI for People with Disabilities and Older Adults
The National Academies of Sciences, Engineering, and Medicine (NASEM) have released a brief report, ...
North Texas Traumatic Brain Injury Model System
Research from the NIDILRR-funded North Texas Traumatic Brain Injury Model System Center (NTTBIMS) was recently featured in a news segment, ...
Parents with Serious Mental Illnesses May Face More Scrutiny from Child Protective Services
Researchers at the Rehabilitation Research and Training Center on Community Integration and Participation of Individuals with Psychiatric Disabilities looked at data from the PULSE Healthcare Survey, a large national survey of adults ages 18-65 conducted annually by Truven Health Analytics. The data for this study came from 42,761 respondents who answered questions about their mental health and parenting status.
For Youths with Mental Health Disorders Who Were Involved with the Criminal Justice System, Education is Critical for Job Success
Researchers at the Rehabilitation Research and Training Center on Learning and Working During the Transition to Adulthood (Transitions ACR) looked at data from 1,261 justice-involved youths in Pennsylvania and Arizona who were enrolled in a larger study called the Pathways to Desistance study. The youths were 14-18 years old when they joined the study, and they entered the study after being found guilty of a serious crime such as assault, burglary, or drug or property felonies.
Young Adult Children of Parents with Disabilities Can Experience High Self-Esteem and Positive Childhoods
Researchers at the National Center for Parents with Disabilities surveyed 2,340 young adults who had applied for a college scholarship. The respondents were young adults ages 17-21 who were enrolled in or accepted to college and who had at least one parent with a disability.
nTIDE January 2019 Jobs Report: Job Numbers Hold Steady for Americans with Disabilities
RTC:Rural produces fact sheet on employment disparity for rural people with disabilities
In December 2018 the U.S. Census Bureau released the 2013-2017 American Community Survey summary data. In the recently released fact sheet “Employment disparity grows for rural Americans with disability,” RTC:Rural researchers used this data to begin exploring how employment rates have changed for people with disabilities in the context of changing economic conditions. They found increasing disparities between people with and without disabilities across the country as well as across the rural-urban continuum.
Improving Care to Prevent Suicide Among People with Serious Mental Illness
Suicide prevention initiatives are part of much broader systems connected to activities such as the diagnosis of mental illness, the recognition of clinical risk, improving access to care, and coordinating with a broad range of outside agencies and entities around both prevention and public health efforts. Yet suicide is also an intensely personal issue that continues to be surrounded by stigma.
Brief Counseling May Help People with Muscle and Joint Conditions Stay Employed
Muscle and joint conditions such as arthritis, lupus, or fibromyalgia may result in long-lasting pain and disability. According to recent studies, people with those conditions may have difficulty keeping jobs if their symptoms make it hard to get to and from work or to perform work-related activities, such as walking, standing, or bending. They may also encounter physical barriers in the workplace, such as stairs or heavy doors, or policy barriers such as inflexible leave policies.
Longitudinal Examination of Resilience After Traumatic Brain Injury: A Traumatic Brain Injury Model Systems Study
Harnessing Mobile Devices for Nervous System Disorders
The critical importance of using mobile technology is clear to anyone in the health professions, particularly those who treat people with central nervous system (CNS) disorders. To explore current developments and opportunities for using mobile technology to advance research and treatment of CNS disorders, the National Academies’ Forum on Neuroscience and Nervous System Disorders hosted a workshop in June 5–6, 2018. This publication summarizes the presentations and discussions at the workshop.
Thirty Years of National Institute on Disability, Independent Living, and Rehabilitation Research Traumatic Brain Injury Model Systems Center Research—An Update
The Traumatic Brain Injury Model Systems Center (TBIMSC) program was established by the National Institute on Disability, Independent Living, and Rehabilitation Research in 1987, with the goal of conducting research to improve the care and outcomes for individuals with moderate-to-severe traumatic brain injury (TBI). This article provides an update on TBIMSC research program activities since 2010 when a similar article was published.
The Model Systems Databases
NIDILRR funds three national data centers that house and disseminate data on individuals who are treated through Spinal Cord Injury Model System Centers, the Traumatic Brain Injury Model System Centers, and the Burn Injury Model System Centers.
HCBS Outcome Measurement Database
The HCBS Instrument Database: Over 120 instruments, including those widely used at the national level as well as those developed for more specific purposes (e.g., research projects) are contained within the database. This includes those tools most frequently used by States in their assessment of HCBS outcomes (e.g., National Core Indicators Adult Consumer Survey (NCI ACS); National Core Indicators Aging and Disabilities (NCI AD); CQL Personal Outcome Measures (POM).
“Going the Extra Mile”: Disclosure, Accommodation, and Stigma Management among Working Women with Disabilities
Although research has quantitatively evaluated the impacts of stigma upon working women with disabilities (WWD), nuanced, qualitative accounts voiced by these women are rare. To address this literature gap, we conducted seven focus groups with 42 WWD. We asked: “What are women’s experiences of disability disclosure and accommodation in the workplace?” Findings reveal that WWD face intentional and unintentional structural discrimination and must weigh the pros and cons of disclosure and navigate devaluation threats in pursuing workplace accommodations.
Mild TBI Can Have a Lasting Impact for Young Children, but It’s Not Clear Whether They Receive the Rehabilitation and Education Services They May Need
A traumatic brain injury (TBI) is brain damage resulting from an external force, such as a fall or a car accident. TBI can be rated as mild, moderate, or severe depending on how long the person loses consciousness. Some people with mild TBI, sometimes called a concussion, may still experience injury serious enough for the damage to be seen on imaging tests like magnetic resonance imaging (MRI).