Research Brief: Family Caregiver Support for People with IDD

The NIDILRR-funded Rehabilitation Research and Training Center (RRTC) on Family Supports and the RRTC on Community Living for People with Intellectual Disabilities (RTC/CL) have published a report, Family Caregiver Support for People with Intellectual and Developmental Disabilities (IDD). This report uses data from the Family and Individual Needs for Disability Supports Survey (FINDS) to describe the kinds and amount of supports provided by families to individuals with IDD living in their family home. Caregivers provided an average of 9 different kinds of support and more than half of all caregivers reported providing these supports more than 40 hours per week. More than half of caregivers in this survey reported being aged 50 or older, highlighting the critical need to start planning for a future when aging caregivers are no longer able to continue providing significant amounts of support for their family members.